Summer last year was spent in/out/in/out of hospital and my lil Jedi had lost some of his magic sparkle. Stuck indoors myself I had to think quick yet ‘brain fog’ took over as all I wanted was a Cuba getaway but no nada no & no flying aloud yet😦 So…the weather was looking real good for a few days in UK and Butlins was not top of my list place but the hey ‘let‘s do this’ was all I could hear in my head while in Mummy Mode!!
Being diagnosed with something we never heard of: Chiari Type 1 with Hydrocephalus aaaaand making it through Brain surgery to fit a Shunt to drain fluid, more debilitating illness and a multitude of chronic misery for months on end whilst watching and helping his Mother battle MS last year, it’s very fair to say this lil 11 year old Jedi needed a well deserved break in 2016!
Yet still unable to fly out on a plane this summer to swim with dolphins or soak up some Caribbean Sun we opted for a UK break…yes..lol..the good ole #Butlins British Holiday – Dolphin Room@Wave Hotel #Bognor Regis, United Kingdom..um.. Where the sun always shines? (or not)!!!
Um..fair to say, I was not looking fwd to going to ‘any’ beach destination in the UK for more than a day, yet knew it was essential for me to be the best Mum I can be and have a holiday myself. MS or not we put our children first, I knew Jedi was in greater need for time away, a sunny break to lift up his spirit and bring back his gentle yet effervescent smile!
As you know English weather is always a good topic for conversation, can be debated all over the world and even with complete strangers there is always something to say or comment on the lack of sunshine in ‘Summer’.
Well it does SHINE at Butlins Bognor Regis…it’s sunny fun every day with most of the staff from the Red Coates, Professional Football Coaches, Deck Chefs and The Entertainment Specialists who double up from #Aladdin Rocks, #Splat #Diversity Academy and Dance show – 😎Amazing and Seriously ALOT ‘to do’ and cram in on a daily basis yet I was able to relax back with a Heavenly Back Massage in the beautiful Spa #OceanHotel, while Jedi & the boys went off to have fun in a safe and clean British Butlins Holiday environment!
Having MS can be a challenge for me as a single Mum of 3 boys, especially at times when my brain scrambles everything, even reading can be strange when words no longer look the same or I simply can’t spell…um… then text to speech app is a joke as my speech gets jumbled or I forget what I am supposed to be saying/typing every 5 mins. This blog post is probably all over the gaff and a tad out of sync as its taken me 15 saves to type but hey…at least Butlins onsite staff and Wave Hotel team helped me with sorting suitable accommodation after booking the ‘wrong’ hotel and having a mini panic attack…yes…me panic…the allocations team took the stress away from me by handling everything from disabled parking space, perfect room with sea view, Premium dining and even got our Jedi taking part in Football Coaching with 2 brilliant coaches who treated him just like any other child! 😉Since his surgery to fit a VP Shunt many sports and other activities have been very limited due to tiredness, painful headaches or the staff simply saying ‘no’ he can’t play due to the Shunt – incase of head injury….but life goes on & Jedi is using the force!
Life will never be the same yet we are determined to make it better every day, so being able to get away for a week is almost prescriptionious ..if thats a word?!? Let’s just end this by saying a Massive Thank you to ALL the staff and happy workers @Butlins Bognor Regis and #WaveHotel Staff Team, Reception Manager, Drizel and our Super Trooper Star Staff Member Sam for going the extra mile for us! Good Team effort to help us but I have to Big Up Sam for her good spirit and ability to communicate clearly when I was 100 percent confused as to what she was saying. Patience really was akin to a saint because I was speaking fluent sh!t and some half sense from sheer exhaustion, tiredness and shock about the booking error.. Yet when I explained how confusing reading can be at times Sam took the extra time to make that human connection with me and listened with intent to help us rather than reply with the standard ‘did you READ the booking information? Or NO, We can’t help you now’ long n short….sorted!!
Authentic people in the workplace are rare these days, especially when it comes to customer service jobs/work/life/balance and so on… yet I can honestly say there are more genuine articles @Bognor Butlins than I had expected and we sincerely had a brilliant time. It was deeply emotional yet peaceful, calming, soothing aaaand a full on exciting experience – heart warmed to see my sons smile again all in one place #BognorRegis #Butlins #WaveHotel!!
The Wave Hotel’s Sam gave us more than a hi 5 for our 8 days stay!